Question 1

What is IBDology?

Accepted Answer

IBDology is the front door to a family of inflammatory bowel disease (IBD) resources from the Holubar Lab. It points you to the right site for your need &mdash; whether you are a clinician looking for evidence and quality data, or a patient looking for plain-language education.

Question 2

Which sites are for patients and which are for providers?

Accepted Answer

Patient sites include Pouchy (J-pouch), Crohnz (Crohn's), and pCrohns (perianal Crohn's). Provider/clinician sites include Pouchology (pouch literature) and Crohnsology (Crohn's evidence). The consortia &mdash; iPouch, iCrohnz, and NSQIP IBD &mdash; serve clinicians and researchers.

Question 3

I have a J-pouch (IPAA). Where should I start?

Accepted Answer

Patients and families should start at pouchy.org for friendly, plain-language education. Clinicians and researchers can search the pouch literature at pouchology.org.

Question 4

I have Crohn's disease. Which site is for me?

Accepted Answer

For intestinal Crohn's, patients should visit crohnz.org; if you have perianal disease (fistulas, abscesses, setons), see pcrohns.org. Clinicians can use crohnsology.org for the evidence base.

Question 5

What is IBD-PSC?

Accepted Answer

IBD-PSC is inflammatory bowel disease together with primary sclerosing cholangitis, a liver condition. The overlap changes surveillance, colorectal cancer risk, transplant considerations, and pouch decisions. Learn more at ibdpsc.org.

Question 6

Who runs these sites?

Accepted Answer

They are produced by the Holubar Lab, led by Stefan D. Holubar, MD, MS, Professor of Surgery in the Department of Colon & Rectal Surgery at Cleveland Clinic. The sites are educational and do not replace advice from your own care team.

References